Presentations and Statements

  • Presentation by
    Jonas Gross
    Organisation
    Chairman, Digital Euro Association
    • The Digital Euro: Challenges and Opportunities
  • Speaker
    Bert Winnen
    Organisation
    National Sickness Insurance and Invalidity Institute (INAMI)

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Le Collège des Médecins-Directeurs et Le Fonds Spécial de Solidarité
  • Speaker
    Dorica Dan
    Organisation
    Romanian Prader Willi Association, Romanian National Alliance for Rare Diseases & of ePAG ITHACA

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Ensuring strong European solidarity for rare disease patients
  • Speaker
    Simone Boselli
    Organisation
    EURORDIS

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Ensuring strong solidarity for European people leaving with RD
  • Speaker
    Sylvie Maiella & Ana Rath
    Organisation
    INSERM (FR), National Institute of Health and Medical Research& Coordinator of the global Orphanet network

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Orphanet contribution to the RD health data ecosystem
  • Speaker
    Prof. Dr. Ildiko Horvath
    Organisation
    National Koranyi Institute for Pulmonology

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Perspective on access to care and on European cooperation
  • Speaker
    Irène Kesisoglou
    Organisation
    Sciensano

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • European Health Data Space for Secondary Use Pilot project
  • Speaker
    Anne Hendrickx
    Organisation
    SOLIDARIS

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Can fair prices for orphan medicines be achieved?
  • Presentation by
    Maik Schmahl, Maritime Safety at DG MOVE
    Organisation
    European Commission
    • The EU’s Green Deal and its strategy for clean, safe and competitive waterborne transport
  • Presentation by
    Mattia Cecchinato, Senior Advisor Offshore Wind
    Organisation
    Wind Europe
    • The offshore wind sector in Europe