Christa Schweng, EESC President, and Baiba Miltoviča, President of the TEN Section
Organisation
EESC
The EU is faced with an unprecedented surge in energy prices, aggravated by the consequences of the Russian aggression in Ukraine and placing an unbearable burden on European households and businesses. Ahead of the extraordinary Energy Council on 9 September, the EESC calls for joint European action to ensure the stability of electricity prices and to urgently reform the energy market.
National Sickness Insurance and Invalidity Institute (INAMI)
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
Le Collège des Médecins-Directeurs et Le Fonds Spécial de Solidarité
Romanian Prader Willi Association, Romanian National Alliance for Rare Diseases & of ePAG ITHACA
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
Ensuring strong European solidarity for rare disease patients
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
Ensuring strong solidarity for European people leaving with RD
INSERM (FR), National Institute of Health and Medical Research& Coordinator of the global Orphanet network
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
Orphanet contribution to the RD health data ecosystem
