01/09/2022
Speaker
Simone Boselli
Organisation:
EURORDISPresentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
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Presentations
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Displaying 71 - 80 of 5147
01/09/2022
Speaker
Sylvie Maiella & Ana Rath
Organisation:
INSERM (FR), National Institute of Health and Medical Research& Coordinator of the global Orphanet networkPresentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
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Orphanet contribution to the RD health data ecosystem
01/09/2022
Speaker
Prof. Dr. Ildiko Horvath
Organisation:
National Koranyi Institute for PulmonologyPresentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
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Perspective on access to care and on European cooperation
01/09/2022
Speaker
Irène Kesisoglou
Organisation:
SciensanoPresentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
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European Health Data Space for Secondary Use Pilot project
01/09/2022
Speaker
Anne Hendrickx
Organisation:
SOLIDARISPresentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
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Can fair prices for orphan medicines be achieved?
31/08/2022
Presentation by
Maik Schmahl, Maritime Safety at DG MOVE
Organisation:
European CommissionDownloads:
31/08/2022
Presentation by
Mattia Cecchinato, Senior Advisor Offshore Wind
Organisation:
Wind EuropeDownloads:
31/08/2022
Presentation by
Faig Abbasov, Director Shipping
Organisation:
Transport & EnvironmentDownloads:
31/08/2022
Presentation by
Sotiris Raptis, Secretary General
Organisation:
European Community Shipowners’ AssociationsDownloads:
08/08/2022
Presentation by
Michaela Kauer
Downloads: