Ensuring strong European solidarity for rare disease patients - Related Presentations

Displaying 1 - 7 of 7

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02/09/2022

Le Collège des Médecins-Directeurs et Le Fonds Spécial de Solidarité

Speaker
Bert Winnen
Organisation: 
National Sickness Insurance and Invalidity Institute (INAMI)

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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Le Collège des Médecins-Directeurs et Le Fonds Spécial de Solidarité

01/09/2022

Ensuring strong European solidarity for rare disease patients

Speaker
Dorica Dan
Organisation: 
Romanian Prader Willi Association, Romanian National Alliance for Rare Diseases & of ePAG ITHACA

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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Ensuring strong European solidarity for rare disease patients

01/09/2022

Ensuring strong solidarity for European people leaving with RD

Speaker
Simone Boselli
Organisation: 
EURORDIS

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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Ensuring strong solidarity for European people leaving with RD

01/09/2022

Orphanet contribution to the RD health data ecosystem

Speaker
Sylvie Maiella & Ana Rath
Organisation: 
INSERM (FR), National Institute of Health and Medical Research& Coordinator of the global Orphanet network

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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Orphanet contribution to the RD health data ecosystem

01/09/2022

Perspective on access to care and on European cooperation

Speaker
Prof. Dr. Ildiko Horvath
Organisation: 
National Koranyi Institute for Pulmonology

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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Perspective on access to care and on European cooperation

01/09/2022

European Health Data Space for Secondary Use Pilot project

Speaker
Irène Kesisoglou
Organisation: 
Sciensano

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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European Health Data Space for Secondary Use Pilot project

01/09/2022

Can fair prices for orphan medicines be achieved?

Speaker
Anne Hendrickx
Organisation: 
SOLIDARIS

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

Downloads: 

Can fair prices for orphan medicines be achieved?

Displaying 1 - 7 of 7