National Sickness Insurance and Invalidity Institute (INAMI)
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
Le Collège des Médecins-Directeurs et Le Fonds Spécial de Solidarité
Romanian Prader Willi Association, Romanian National Alliance for Rare Diseases & of ePAG ITHACA
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
Ensuring strong European solidarity for rare disease patients
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
Ensuring strong solidarity for European people leaving with RD
INSERM (FR), National Institute of Health and Medical Research& Coordinator of the global Orphanet network
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
Orphanet contribution to the RD health data ecosystem
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
Perspective on access to care and on European cooperation
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
European Health Data Space for Secondary Use Pilot project
Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022
