This opinion draws attention to the needs of family members taking care of older, chronic ill or disabled relatives. Informal carers, as they are called, represented by a majority of women, work for free, and are more vulnerable to falling into poverty. The opinion calls for public policies in this field and a recognition of their important societal role.
Download — Udvalgets udtalelse: The role of family members caring for people with disabilities and older persons: the explosion of the phenomenon during the pandemic
Rare diseases are often chronic and sometimes disabling diseases affecting an estimated 25/30 million European citizens. Even more people are affected as care taker or family. Patients and relatives face difficulties in access to diagnosis, treatment or care and in their inclusion to society and labour market. In this opinion, the EESC presents its recommendations on how to improve social protection for these patients and raise awareness on their situation and needs.
Download — Udvalgets udtalelse: Ensuring strong European solidarity for rare disease patients
The European strategy for data proposed the establishment of domain-specific common European data spaces. The European Health Data Space (‘EHDS’) is the first proposal of such domain-specific common European data spaces. It will address health-specific challenges to electronic health data access and sharing, is one of the priorities of the European Commission in the area of health and will be an integral part of building a European Health Union. EHDS will create a common space where natural persons can easily control their electronic health data. It will also make it possible for researchers, innovators and policy makers to use this electronic health data in a trusted and secure way that preserves privacy.
Download — Udvalgets udtalelse: European Health Data Space
This opinion presents the EESC's contribution to the current discussion on the future of care and health across Europe and to the European Care Strategy. The Committee recommends setting common minimum standards to ensure that every one living in the EU has access to affordable, accessible and high-quality care, that there is proper investment in the care services and in health, that the health sector, care providers and health workers are properly recognised and valued, including through investment in skills, decent working conditions, and the creation of quality jobs.
Download — Udvalgets udtalelse: Health Workforce and Care Strategy for the future of Europe
In this opinion, the EESC presents its view on the Commission's proposal establishing the European Health Emergency Preparedness and Response Authority. (HERA), whose mission is to prevent, detect, and rapidly respond to transnational health emergencies. The EESC welcomes this initiative but is concerned by the very limited role given by HERA to the European Parliament, regional authorities, health insurance bodies and civil society organisations and recommends their stronger involvement by adapting HERA structure and ensuring greater transparency with regard to the funds allocated and spent by and through HERA.
Download — Udvalgets udtalelse: European Health Emergency Preparedness and Response Authority (HERA)
