Presentations and Statements

  • Speaker
    Juan Fernando Muñoz
    Organisation
    Health Ministry, Spain

    Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024.

    • Rare diseases and the European Health Data Space
  • Speaker
    Nichola Larkins
    Organisation
    DG SANTE, European Commission

    Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024.

    • Rare Disease & European Reference Networks
  • Speaker
    Enrique Terol
    Organisation
    Permanent Representation of Spain to the EU

    Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024.

    • An EU Action Plan for Rare Diseases
  • Speaker
    Valentina Bottarelli
    Organisation
    EURORDIS

    Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024.

    • Leaving No One Behind: European Commitment to Rare Diseases
  • Speaker
    Victoria Hedley
    Organisation
    Newcastle University Centre of Research Excellence in Rare Disease, UK

    Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024

    • What should be included in a European Action Plan for Rare Disease?
  • Speaker
    Anne Sophie Lapointe
    Organisation
    French Ministry of Health and Prevention

    Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024

    • National Mirror Groups on the development of national strategies
  • Speaker
    Maria Rosa Mollica
    Organisation
    DG JUST, European Commission

    Presentation at the public hearing "Ensuring sexual and reproductive health rights for women with disabilities" on 8 July 2024

    • Ensuring sexual & reproductive health rights for women with disabilities
  • Speaker
    Sara Rocha
    Organisation
    European Council of Autistic People (EUCAP) & EDF's Women Committee

    Presentation at the public hearing "Ensuring sexual and reproductive health rights for women with disabilities" on 8 July 2024

    • Forced sterilisation of women and girls with disabilities
  • Speaker
    Charlotte Olhausen
    Organisation
    European Union of the Deaf (EUD)

    Presentation at the public hearing "Ensuring sexual and reproductive health rights for women with disabilities" on 8 July 2024

    • Ensuring sexual and reproductive health rights to women with disabilities
  • Speaker
    Virginia Ossana
    Organisation
    Women Enabled International (WEI)

    Presentation at the public hearing "Ensuring sexual and reproductive health rights for women with disabilities" on 8 July 2024

    • Hearing on ensuring sexual and reproductive health rights to women with disabilities in the Global South
    • Speech by Virginia Ossana, Senior Program Officer, Capacity & Movement Strengthening, Women Enabled International (WEI)