European Economic
and Social Committee
Press
EESC press release
#RareDiseases - The EU Action Plan must step up European-national cooperation
A high-level conference convened in Warsaw under the auspices of the Polish Presidency of the Council of the European Union highlighted the importance of adopting a comprehensive Europe-wide policy framework on rare diseases.
Read more (EN, BG, ES, FR, IT, PL, RO)
International press cuts
AGENCE EUROPE
EUROPEAN INTEREST
ERDERA
- https://erdera.org/news/rare-disease-experts-to-gather-in-warsaw-to-shape-europes-future-strategy/
- https://erdera.org/news/rare-disease-conference-kicks-off-in-warsaw-building-momentum-for-a-unified-eu-strategy/
- https://erdera.org/news/eu-rare-disease-conference-concludes-in-warsaw-with-renewed-focus-on-early-diagnosis-and-collaborative-research/
NEWS MEDICAL
BULGARIA
FRANCE
- MA CLINIQUE : https://ma-clinique.fr/le-plan-daction-de-lue-doit-intensifier-la-cooperation-europeenne-nationale
IRELAND
ITALY
- AGENSIR : www.agensir.it/quotidiano/2025/4/15/malattie-rare-36-milioni-le-persone-affette-nellue-comitato-economico-e-sociale-serve-un-piano-dazione-europeo/
- AGENSIR: www.agensir.it/quotidiano/2025/4/15/rare-diseases-36-million-people-affected-in-the-eu-economic-and-social-committee-we-need-a-european-action-plan/
POLAND
- EURACTIV : www.euractiv.com/section/health-consumers/news/poland-sets-sights-on-tackling-postcode-lottery-in-rare-disease-care/
- TERMEDIA: www.termedia.pl/mz/Tylko-6-procent-chorob-rzadkich-ma-ukierunkowana-terapie-,61166.html