Ensuring strong European solidarity for rare disease patients

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ETSK:n lausunto: Ensuring strong European solidarity for rare disease patients

Rare diseases are often chronic and sometimes disabling diseases affecting an estimated 25/30 million European citizens. Even more people are affected as care taker or family. Patients and relatives face difficulties in access to diagnosis, treatment or care and in their inclusion to society and labour market. In this opinion, the EESC presents its  recommendations on how to improve social protection for these patients and raise awareness on their situation and needs.