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01/09/2022
Speaker
Simone Boselli
Organisation: 
EURORDIS

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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Ensuring strong solidarity for European people leaving with RD

01/09/2022
Speaker
Sylvie Maiella & Ana Rath
Organisation: 
INSERM (FR), National Institute of Health and Medical Research& Coordinator of the global Orphanet network

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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Orphanet contribution to the RD health data ecosystem

01/09/2022
Speaker
Prof. Dr. Ildiko Horvath
Organisation: 
National Koranyi Institute for Pulmonology

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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Perspective on access to care and on European cooperation

01/09/2022
Speaker
Irène Kesisoglou
Organisation: 
Sciensano

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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European Health Data Space for Secondary Use Pilot project

01/09/2022
Speaker
Anne Hendrickx
Organisation: 
SOLIDARIS

Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

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Can fair prices for orphan medicines be achieved?

31/08/2022
Presentation by
Faig Abbasov, Director Shipping
Organisation: 
Transport & Environment
Downloads: 

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