Presentations and Statements

  • Speaker
    Simone Boselli
    Organisation
    EURORDIS

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Ensuring strong solidarity for European people leaving with RD
  • Speaker
    Sylvie Maiella & Ana Rath
    Organisation
    INSERM (FR), National Institute of Health and Medical Research& Coordinator of the global Orphanet network

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Orphanet contribution to the RD health data ecosystem
  • Speaker
    Prof. Dr. Ildiko Horvath
    Organisation
    National Koranyi Institute for Pulmonology

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Perspective on access to care and on European cooperation
  • Speaker
    Irène Kesisoglou
    Organisation
    Sciensano

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • European Health Data Space for Secondary Use Pilot project
  • Speaker
    Anne Hendrickx
    Organisation
    SOLIDARIS

    Presentation on the occasion of the remote hearing "Ensuring strong European solidarity for rare disease patients" organised by the EESC on 1 September 2022

    • Can fair prices for orphan medicines be achieved?
  • Presentation by
    Maik Schmahl, Maritime Safety at DG MOVE
    Organisation
    European Commission
    • The EU’s Green Deal and its strategy for clean, safe and competitive waterborne transport
  • Presentation by
    Mattia Cecchinato, Senior Advisor Offshore Wind
    Organisation
    Wind Europe
    • The offshore wind sector in Europe
  • Presentation by
    Faig Abbasov, Director Shipping
    Organisation
    Transport & Environment
    • EU Fit-for-55 Shipping
  • Presentation by
    Sotiris Raptis, Secretary General
    Organisation
    European Community Shipowners’ Associations
    • An industrial strategy for the maritime technology sector
  • Presentation by
    Michaela Kauer
    • Presentation by Ms. Kauer, Riga