Rare diseases and the European Health Data Space

Speaker
Juan Fernando Muñoz
Organisation
Health Ministry, Spain

Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024.

  • Rare diseases and the European Health Data Space

Rare Disease & European Reference Networks

Speaker
Nichola Larkins
Organisation
DG SANTE, European Commission

Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024.

  • Rare Disease & European Reference Networks

An EU Action Plan for Rare Diseases

Speaker
Enrique Terol
Organisation
Permanent Representation of Spain to the EU

Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024.

  • An EU Action Plan for Rare Diseases

Leaving No One Behind: European Commitment to Rare Diseases

Speaker
Valentina Bottarelli
Organisation
EURORDIS

Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024.

  • Leaving No One Behind: European Commitment to Rare Diseases

What should be included in a European Action Plan for Rare Disease?

Speaker
Victoria Hedley
Organisation
Newcastle University Centre of Research Excellence in Rare Disease, UK

Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024

  • What should be included in a European Action Plan for Rare Disease?

National Mirror Groups on the development of national strategies

Speaker
Anne Sophie Lapointe
Organisation
French Ministry of Health and Prevention

Presentation at the public hearing "Leaving No One Behind: European Commitment to Rare Diseases" on 12 July 2024

  • National Mirror Groups on the development of national strategies
Video recording

Reforms for a more resilient economy for all: the new EU legislature

Public debate with Fabian Zuleeg, Chief Executive and Chief Economist, European Policy Centre (EPC)
Event type
Debate

Location

Online event
Belgium

Public debate on Reforms for a more resilient economy for all: the new EU legislature with Fabian Zuleeg, Chief Executive and Chief Economist, European Policy Centre (EPC)

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2 years 1 month ago

Energy Digitalisation: Balancing Opportunities and Risks for European Consumers

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Display date
1 year 9 months ago

General Fisheries Commission for the Mediterranean

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